Silent Reflux
One of the first things I say to new parents is “enjoy the first few weeks of baby bliss”.
There is nothing better than bringing that new baby home and falling in a vortex of not knowing what day or time it is. Nonstop snuggles, feeds and diaper changes. In hindsight this sentiment feels highly cliche based on the fact that it is nowhere near my own experience. I think it might terrify new parents if I shared my truth of:
“Watch out! Those first few months will be the worst months of your life”.
The first ten days home with our son, Alessio were far from bliss and challenging to say the least. Even though he was pooping and peeing regularly (the kid pooped on me twice right out of the gate) our son had tested DAT + (Direct Antiglobulin Test is done when the mother is O- blood type and the baby isn’t. It can cause build-up of bilirubin in the blood which is a yellow pigment produced when red blood cells, which carry oxygen around the body, are broken down. Newborn babies who are DAT positive may have higher levels of jaundice and may need to have treatment)
“Damn you universal blood type! Damn you”!
Our sons’ jaundice had us on a strict two hour schedule of wake times and feeds to clear the bilirubin out of his body. The anxiety I felt was overwhelming and I was grateful to have my Doula, April talk me through it and help with the feeds. Ten days later our sweet babe was in the clear only to be left with a giant bleeding diaper rash all over his brand new bum. I could write an entire blog on butt cream, I literally tried them all. Constantly running errands I never expected was also overwhelming and I couldn’t be more thankful for April. She stopped to grab me things like butt cream and nipple shields to save my husband from returning to the store multiple times to return the wrong ones. Bless him he tried.
Since I was new to motherhood and didn’t know a thing about newborns and their sleep other than it wasn’t consistent, I failed to fully understand that it wasn’t normal for my child to be waking up abruptly screaming in agony after 15 – 20 minutes of sleep. I did what I think any new mom would do… I assumed he was hungry and fed him.
That same summer my brother was married only three weeks after Alessio was born. Here we were packing up a newborn, running on no sleep and driving to the mountains to stay in a small hotel room on a weekend the weather decided to drop below zero in the middle of July. (That's 32F for all my American friends)
I left our hotel room all of three times. I felt like I couldn’t breathe, I didn’t want to make anyone uncomfortable around my screaming baby and I was exhausted from being up every hour feeding. I simply thought I had a VERY HUNGRY baby on my hands. I was late to the wedding and left the dinner halfway through; isn’t this what motherhood is supposed to be like? No, it was my motherhood and maybe yours if you can relate.
July 4, 2019
Our 4th wedding anniversary will be one we never forget. Alessio cried every moment his eyes were open and exhausted himself only to pass out and wake up again screaming. We passed him back and forth bouncing on an exercise ball while trying to enjoy the pizza my husband had made and the bottle of red wine we had opened. This can't be "normal" so we rushed him to the doctor the next day where he was quickly “diagnosed” with silent reflux and put on Prevacid (a medication made for adults who suffer from chronic heartburn and reflux). I was given instructions to take him off the prescription in two weeks when things were expected to improve, and he was put on a strict feeding schedule. Since I was constantly feeding my crying baby his overly full stomach was causing him worse pain than he was already in. At this point I felt like a failure and didn't enjoy being a new mom, I'm not even ashamed to say it because this shit is hard!
When most people think about “infant reflux” they think spitting up, but my son never actually spit up. Instead he would make these horrible gulping sounds, arch his back if we laid him down flat and was always screaming. It sounded like there was fluid in his lungs when he would breathe, and he was always congested but without the snot or boogers. He wheezed, he snored, and had a horrible cough. My husband and I would casually joke that if he started talking tomorrow, he would sound like the lady from Something About Mary who smoked a pack of cigarettes a day and tanned her skin to look like leather. Funny, not funny, I know.
My doctor went away on a two month vacation the day after our reflux “diagnoses” so when things started to get worse I had no one that I trusted, to call for help. I would call the 811 Health Link number and they would go over all the standard questions, get me to check his temperature and then proceed to tell me that it’s normal for babies his age to cry. I also got this question:
“Do you have a plan for when you can’t handle the crying anymore Mrs. Caputo”?
By the time my son was almost two months old I’m sure they had flagged my chart with “Crazy New Mom”. I think I continued to call because I needed someone to validate how I was feeling. I needed someone to tell me this wasn’t normal. Then it happened. Alessio woke up screaming one morning and cried hysterically for over three hours passing out mid cry in the baby carrier I was wearing (by the way, for you moms out there surviving a baby with colic and reflux the Solly Wrap is light weight and keeps your baby close when they need you the most) His breathing had become shallow and raspy and he sounded like he had a rattle in his chest. When I called 811 the first thing the nurse asked was “what is that sound”? and when I told her it was my son, she asked me to call an ambulance and get him to the hospital ASAP.
No panic was had by anyone that day… NOT!
Be sure to read Part 2 of this journey about our baby's Silent Reflux.
HELLO, I’M LISA
My goal for Little Village Sleep is to build the community I needed when I was a new mom struggling with the unexpected, like having a baby with severe reflux that could have been avoided with a tongue tie release. So I immersed myself in comprehensive training to be a Certified Baby-Led Sleep & Well Being Specialist so that I can best help my family, and the bonus is I can now help others.
Knowledge is power and parents need resources for more than just sleep, but for all areas of parenting.
It takes a Village to raise a child!
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